Category Archives: Blog

Lyme Disease and ALS

There is a lot of controversy regarding the connection between Lyme disease and ALS.

To understand the debate, let’s discuss some basics of both diseases as described by the experts.

lymediseaseimage

What is Lyme Disease:

Most people know that you get Lyme Disease from an infected tick, but many people don’t understand or realize the damage caused by Lyme Disease. If left untreated, the disease can lead to severe and life threatening medical issues.

“Lyme disease, the most common vector-borne illness in the United States, is a multi-system illness usually caused by infection with the spirochete Borrelia burgdorferi and the body’s immune response to the infection.[1] The disease is transmitted to humans via tick bites, from infected ticks of the genus Ixodes.”[1]

What is Amyotrophic Lateral Sclerosis (ALS)?

ALS is a progressive neurodegenerative disorder for which there is no cure.  Life expectancy following a diagnosis is two to five years.

“Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig’s disease, is a rapidly progressive, invariably fatal neurological disease that attacks the nerve cells (neurons) that are responsible for controlling voluntary muscles (muscle action we are able to control, such as those in the arms, legs, and face). This disease belongs to a group of disorders known as motor neuron diseases, which are characterized by the gradual degeneration and death of motor neurons.”[2]

How are these two diseases different?

ALS is currently an incurable disease. Lyme disease can be treated when discovered in a timely manner by antibiotics. If left untreated, Lyme disease can result in devastating medical problems and death. Lyme disease is known to mimic many of the symptoms of other diseases causing issues on diagnosis and subsequent treatment.

Because ALS and Lyme disease can exhibit similar symptoms, incidents of misdiagnosis of Lyme Disease as ALS have been reported.  This very recent case reported by NBC highlights a misdiagnosis of ALS when the patient actually had Lyme disease. The patient’s doctor insisted he had ALS, and they accepted the reality of this diagnosis.

“Matt remembered.”He said, “Enough’s enough. The reality is, you have ALS, and you know, you really need to embrace what I am telling you.” Matt’s family was told to help him come to terms with his death.

But inside their home, the Slatner family was doing their own research on Lyme symptoms and everything kept pointing to those tick bites.

“Every single thing is a Lyme symptom,” Stephanie said, remembering the long days and nights of research, three busy kids, and a husband who was slowly fading away. “No one would listen. I mean, they made us both feel like we were crazy.”[3]

Does everyone with ALS have Lyme?

“Lyme disease does not cause ALS, and generally in a diagnostic workup, a neurologist can easily separate ALS from Lyme infections, either clinically or with testing.”[4]

Despite the current belief that Lyme disease does not cause ALS, some studies have shown that many PALS do test positively for Lyme. This has caused a lot of disagreement between physicians and patients citing high statistical evidence of Lyme in many patients with ALS as more than just a coincidence.

Lyme Disease mimics other diseases

ALSLYME

( Image Ref: http://lymediseaseguide.org/wp-content/uploads/2011/07/lyme-disease-treatment-diagnosis.gif)

Does Lyme cause ALS? 

Many ALS patients have tested positively for Lyme disease, but not all Lyme patients develop ALS.  Currently, there is no definitive proof that Lyme disease causes ALS. Although often mistaken for ALS with similar symptoms, Lyme can be treated with antibiotics and other protocols dependent on the severity and progression. A cure for ALS still has not been found, but the Deanna Protocol has been shown to help with quality of life.

This topic continues to be a source of debate among physicians and PALS, with controversy evident on the internet and social media. If you are bitten by a tick, please seek medical attention immediately.

For more information on Lyme Disease: visit http://www.cdc.gov/lyme/

For more information on ALS: http://www.alsa.org/about-als/ 

[1] Ref: http://emedicine.medscape.com/article/330178-overview

[2] Ref: http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/detail_ALS.htm

[3] http://m.nbc12.com/nbc12/db/345738/content/i7HSWfXF/gallery

[4] https://www.washingtonpost.com/opinions/five-myths-about-als/2014/08/22/70007ef2-2842-11e4-86ca-6f03cbd15c1a_story.html

PALS and Nutrition

Guest Post by Sarah Martin

SarahMartinMy name is Sarah Martin. I am a junior neuroscience major at Drake University in Des Moines, Iowa. When I was 14 years old and a sophomore at the Illinois Mathematics
and Science Academy, my principal and close friend, Dr. Eric McLaren, was diagnosed with amyotrophic lateral sclerosis (ALS). ALS is a fatal neurodegenerative disease that
affects nerve cells in the brain and spinal cord. Since his diagnosis, I have been
passionate about fighting ALS. I conduct research at universities in the Midwest, attend support groups in the Chicagoland area to meet pALS and their families, blog about my journey to a cure for the disease, speak at schools about ALS and so much more! Dr.
McLaren passed away from ALS in June of 2014, but I have made it my life’s mission to
put an end to this disease. My future plans include earning a doctorate degree,
becoming an ALS researcher, and helping develop an effective treatment for ALS.
The most important part of my ALS work is the people with ALS (pALS). During my time
at ALS support groups, I have learned that because the disease is characterized by
muscle weakness and atrophy, there are a handful of challenges pALS may face in
regards to eating. Difficulties with upper body coordination may make it difficult to
prepare meals. Weakness of tongue and facial muscles may not only make it tough to
safely chew and swallow food, but can also prolong mealtimes. In addition, aspiration of
solids or liquids into the lungs can result in aspiration pneumonia. pALS may experience
a loss of appetite and fatigue which can make eating a difficult task. As ALS progresses
in a person, the amount of calories consumed typically decreases.
Proper nutrition is vital. The human body requires various nutrients to function. Due to
decreased food intake in ALS, it can be difficult to maintain nutritional needs, but there
are nutritionists, dietitians and other experts working to improve the nutritional status of
pALS. In order to maintain the nutritional needs of pALS, tips for safer chewing and
swallowing techniques can be utilized, such as taking smaller bites, eating slowly and
sitting in an upright position while eating. Healthcare professionals can also assist in
making decisions regarding alternate feeding options, such as a feeding tube.
Maintaining the nutritional needs of pALS is important as it can help slow down the
muscle breakdown process and prevent a decrease in weight loss (nutrition-related). It
can also help keep the immune system strong and improve the quality of life for those
with ALS!

For More Information about Sarah Martin contact:

Sarah’s Mission
A woman on a mission to end ALS/MND/Lou Gehrig’s disease
Follow my journey at www.sarahmartinals.com
missionsarahs@gmail.com

Deanna Protocol – Nutritional/Metabolic Protocol for People with ALS

The Deanna Protocol: Help with ALS

A diagnosis of amyotrophic lateral sclerosis (ALS) may leave you feeling overwhelmed, scared, angry, depressed and confused. But there is hope and help with the Deanna Protocol®.

ALS

ALS is a progressive neurodegenerative disorder for which there is no cure. In ALS, nerve cells that control your muscles degenerate and die, leading to loss of function, including the ability to move, eat, speak and breathe. Life expectancy following a diagnosis is two to five years.

The Center for Disease Control and Prevention (CDC) estimates that ALS affects about 1.6 people per 100,000 population in the United States and that about 5,000 people are diagnosed with ALS each year. Researchers have found that in patients with ALS:

  • Nerve cells lose energy
  • Without energy the nerve cells die
  • Glutamate, a neurotransmitter (a chemical that sends messages from nerve cells to muscle cells) byproduct of cell metabolism, is present in excessive amounts

These findings led to the development of the Deanna Protocol.

The Deanna Protocol

In 2009, Dr. Vincent Tedone, a retired orthopedic surgeon, was motivated to research alternative ALS therapies when his 30-year-old daughter, Deanna, was diagnosed with the disease. He wondered if ALS could be treated similarly to diabetes, a disease in which the insulin-producing cells of the pancreas produce little or no insulin, causing high glucose levels in the blood that can damage the heart, kidneys and other organs and systems. Diabetes treatment consists of replacing the missing insulin. Dr. Tedone theorized that replacing the missing metabolic enzymes that provide cells with energy would slow ALS progression.

As a result, Dr. Tedone put together the Deanna Protocol, a metabolic therapy, that has been shown to improve muscle function, reduce symptoms and increase longevity in mice with ALS. Although no human clinical trials have been conducted at this time, patient testimonials about reduced symptoms, improved functioning and better quality of life support these findings.

The Deanna Protocol consists of:

  1. Daily intake of naturally occurring metabolic supplements to supply energy to the cells and antioxidants
  2. Massage with extra virgin coconut oil
  3. Nonexhaustive exercise, including resistance training and aerobics

For more information about the Deanna Protocol, visit Winning the Fight or Simplesa®, a nutritional supplement company.

Simplesa®

Simplesa® is a nutritional supplement company that has developed formulations based on the Deanna Protocol. Simplesa products are the first-ever specific vitamins and supplements for ALS patients, making it easy and affordable to follow the Deanna Protocol. For more information, visit Simplesa.

Additional Support and Resources

Additional help is available from the ALS Association. This national nonprofit organization is dedicated to researching a cure for ALS and providing resources and assistance to ALS patients and their families. Visit their website to find educational materials for both patients and caregivers and for access to local programs and services that can help you cope with ALS.

Exciting News for ALS Stem Cell Treatment

als-breaking-news-promoThe news is buzzing with a groundbreaking study released with very promising results in the last week for ALS patients. The ALS Clinical Trial results indicate that the new Stem Cell Treatment inhibits ALS Disease progression in 87% of patients.

Those with ALS / Lou Gehrig’s disease have had very little hope or agreement from doctors on pharmaceuticals or methods to slow the progression of the disease.  The recent announcement offers encouraging results that a new stem cell treatment can help some patients.  The process evaluated by the study involves the collection of bone marrow stem cells from the patient. After the stem cells are gathered they are treated in a proprietary process. Once the stem cells are ready, they are then directly administered into the patient’s spinal fluid.

Dr. Dimitrios Karussis and his colleagues at Hadassah Medical Center in Israel reported that the treatment not only helped in stopping ALS progression but the same patients showed “notable improvement in their neurological functions.” The sentiment form the ALS researcher is that they are onto something “big” in treating ALS.

Denise Dador of ABC 7 of Chicago noted on January 12, 2016 12 that:

Researchers followed 26 patients for the past four years and 90 percent of patients experienced improvements in walking, talking and hand movement within a month of treatment and the results lasted for several months.

Karussis’ most compelling story is how well the new therapy helped a 22-year-old ALS patient.

“The disease completely stopped progressing and he had a significant improvement in many of his functions including his ability to speak and his motor functions of the hands,” Karussis said.

Neurologist Cliff Segil of Providence St. John’s Medical Center in Santa Monica said it’s easy to create tissue from stem cells, but motor-neurons are a completely different challenge.

That’s why Israeli doctors partnered with biotech firm BrainStorm Cell Therapeutics, which pioneered the cocktail of growth factors added to stem cells.

The process encourages cells to become neurons.

“If this study pans out and they repeat these results in the U.S., and we get 26 patients in the U.S. with similar results, it would really change ALS forever,” Segil said.

The article states that “similar studies are underway at the Mayo Clinic, Massachusetts General Hospital and Boston University.”[1]

The potential for similar methodology to be implemented on other neuro degenerative or motor diseases is also being considered and evaluated.  For more information about this treatment please see the press release:

Jama Neurology Releases Highly Promising Data from ALS Clinical Trial Conducted By Hadassah Medical Organization Jerusalem and Brainstorm Cell Therapeutics

“In the clinical trial of intrathecal infusion of stem cells there were no major adverse effects, and close to 90% of patients showed slowing in the progression of disease, as measured by their respiratory function or their general motor disability” — Principal Investigator Dr. Dimitrios Karussis, MD, PhD, Sr. Neurologist, HMO Neuro

To read more please see: http://www.prnewswire.com/news-releases/jama-neurology-releases-highly-promising-data-from-als-clinical-trial-conducted-by-hadassah-medical-organization-jerusalem-and-brainstorm-cell-therapeutics-300202651.html

Other metabolic programs exist to help improve the quality of life for ALS patients until a cure is found. Simplesa offers the Deanna Protocol® which is a part of the Winning the Fight Program for ALS. It is an all-natural metabolic  program developed by Dr. Vincent Tedone through his research on Amyotrophic Lateral Sclerosis (ALS, or Lou Gehrig’s Disease). Scientific studies conducted on the Deanna Protocol® by Winning the Fight have shown that it benefits individuals with ALS. To view research studies, CLICK HERE.

Please check back as we post updates on this treatment and other important news for ALS patients, families, and caregivers on our site and social media.

 


[1] http://abc7chicago.com/health/hope-for-als-treatment-after-groundbreaking-study/1156176/

Deanna Protocol Bundles – New Year, New Options, Lower Pricing

Deanna Protocol
Deanna Protocol Comprehensive Bundle

 

Each New Year provides new opportunities to grow and help expand our efforts to our customers.  The last year saw heightened attention and popularity of the Deanna Protocol.

A Recap of the Deanna Protocol®

The Deanna Protocol® is an all-natural metabolic program developed by Dr. Vincent Tedone through his extensive research on Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig’s Disease). Scientific studies conducted on the Deanna Protocol® by Winning the Fight have shown that it benefits individuals with ALS.

Simplesa offers several choices for the Deanna Protocol®

Simplesa® understands your struggle with ALS as well as the expense and financial burden for many who want to follow the protocol. The popularity of the Deanna Protocol has enabled us to lower our costs and pass those savings on to you. We’ve reduced the price of the Deanna Protocol Bundle Packs.  The additional bundle choices include preferences for powders, capsules or liquids in the bundles.  Our goal is to make following the Deanna Protocol as simple and cost effective as possible for you!

The one thing that has not changed is that you will still get the same quality products and service you’ve always received from Simplesa!

What are the changes in the bundles for following the Deanna Protocol?

Simplesa has created new bundle packs for those choosing not to follow the full Deanna Protocol Comprehensive Approach, but instead follow core approaches.

We now offer a more varied and flexible approach with more choices for you:

1.     “CORE” Bundles contain the DP Plan Essentials;

2.     “Plus” Bundles which add Liposomal Glutathione to the Core Bundles;

3.     “Comprehensive” Bundles for an all-inclusive approach.

What are the differences between the three options?

1.     The “CORE” Bundles contain all of the DP™ Plan Essentials nutrients: AAKG, AKG, Ubiquinol, GABA, Niacin and 5-HTP. 

a.     You will see two options for the CORE Bundles

i.     “CORE” Bundle 1 – includes AKG+ Capsules

ii.     “CORE” Bundle 2 – includes AKG Liquids

1.     The difference between the two “CORE” Bundles are the choice of AKG+ Capsules or AKG Liquids

2.      The “PLUS” Bundles contain all of the DP™ Plan Essentials nutrients plus Liposomal Glutathione, considered the best antioxidant for the central nervous system.

a.     You will see two options for the “PLUS” Bundles

i.     You get the “Core” Bundle 1 plus you get Liposomal Glutathione

ii.     You get the “CORE” Bundle 2 plus you get Liposomal Glutathione

 

3.     The “COMPREHENSIVE” Bundles contain all of the DP™ Plan Essentials nutrients plus Liposomal Glutathione and the AM & PM Blends. Liposomal Glutathione is considered the best antioxidant for the central nervous system. The AM & PM Blends contain 20 nutrients that support muscle and nerve health based on research from the NIH.  All are included in the Winning the Fight Program for ALS.

a.     The “COMPREHENSIVE” BUNDLES give you 4 choices

i.     “COMPREHENSIVE” Bundle 1  or Bundle 2 include a choice of “CORE” 1 or 2 Bundle plus Liposomal Glutathione and AM & PM Powder Blends

1.     The difference is the choice of AKG+ Capsules or AKG Liquids combined with the AM & PM Powder Blends

ii.     “COMPREHENSIVE” Bundle 3  or Bundle 4 include the  “CORE” 1 or 2 Bundle plus Liposomal Glutathione and AM & PM Liquid Blends

1.     The difference is the choice of AKG+ Capsules or AKG Liquids combined with the AM & PM Liquid Blends

 

How will these changes in Simplesa® Bundles help me?

You now have more choices on how you can follow the Deanna Protocol and at lower prices.

Please click here to explore the new choices and savings on Simplesa® Deanna Protocol Bundles. If you have questions or need help please contact – we are here to help.

ALS research study on support for children and young people affected by ALS.

Guest Blog by Oliver Clabburn

ALS is a disease that not only affects the person diagnosed, but also those that are around. For this reason, it is often called a ‘family disease’ as it impacts upon the whole household. This means that many children and young people will unknowingly fall into a caring role and will begin to help with duties that are not often associated with ‘normal childhood’.

 My family and ALS

I was 7 when my Dad was diagnosed with the disease and I remember being confused as to why things at home were changing. Initially things seemed great. Dad had to stop working because his speech became too slurred, but this meant he would be at home to help with homework when I got back from school each day!

 This didn’t last long though as the disease progressed and his physical body began to slowly deteriorate. Soon enough, the routine of how to pick him up became second nature as falls around the house became more and more frequent. Things gradually got worse and I had to start helping with things like feeding, medication and toileting. Yet, it all seemed normal to a ten-year old and I assumed that all kids do this, right?

 For the final period of his life, my Dad moved into a local hospice and received the most incredible care that he, and my family deserved. Yet with all of the best care in the world, ALS will always win and he eventually lost his battle in 2004. It was at this stage that things started to become ‘real’ to me and the challenges of dealing with bereavement kicked in.

Current Day

Fast forward to the current day and I’m carrying out a PhD in the UK. My area of research is children and young people who provide care for family members with ALS, and also, young people who are bereaved due to the disease.

 When I started my doctorate, I began to investigate different ways of supporting young people affected by the disease. I began to think about my experience and what I found supportive whilst I helped to care and later grieve. People often talk about the power of photographs when remembering people who have died. Unfortunately, my Dad was a keen photographer which meant that there were very few photos with him in them as he always took them! There was however, the answer-phone recording which I would listen to over and over when I was home alone. Sometimes I wouldn’t even listen to the words, and instead, I would hear the individual letters or the tone of his voice and try to imagine what he would sound like saying other things and ‘talking’ to me. Upon reflection, this was my way of reconnecting with him and gradually processing the idea that he had gone. More importantly, it was something I could do by myself and at my pace by pressing the play button on the answering-machine.

I wanted my PhD research to investigate ways of supporting young people who provide care or are bereaved due to ALS. I soon found myself reading up about ‘digital legacies’. A digital legacy is the various things that people create digitally or online which often remain in existence when someone has died. For example, a person’s email or Facebook account which is full of their photographs, messages and memories. This made me think of Dad’s answer phone message and how this was an early type of digital legacy with his voice being stored in a type of digital existence, and more importantly, how this helped and supported me when he had died.

It got me thinking that with the advances in technology, young carers or bereaved young people would not have to settle for a short answerphone message, and that there could be something better out there.

 My Study

My doctoral research is exploring purposefully recorded digital legacies as a means of support for children and young people affected by ALS. People with the disease record a series of videos about their life, memories, accomplishments and messages specifically for a child in their family. The videos are then exported to a DVD or cloud source which is given to the child to use whenever he/she wishes to reconnect and remember. I am going to focus particularly on people’s experiences of creating and using a digital legacy and I am now recruiting participants!

I am hoping to interview around 10 people from the following three groups from now until April 2017:

  1. People with ALS who are recording/have already recorded a digital legacy for a child or young person in their family.
  1. Young people (aged 11-24) who are currently caring for a family member with ALS and use a pre-recorded digital legacy as a means of support.
  1. Young people (aged 11-24) who are bereaved due to losing a family member who had ALS and are using a pre-recorded digital legacy to support them whilst they grieve.

The interview will take place either face-to-face or through Skype, depending on location and preference of those taking part. The interview will last about 30 minutes and will be audio recorded.

If you, or someone you know would like to find out more about my study, or, how to create a video based digital legacy, please visit my research page www.facebook.com/mndlegacy

Support your Bones

Support your Bones

Our bones are the foundation of our body. If our framework is weak, we will fall, figuratively and literally.  Because we don’t see them, the health of our bones are often overlooked until we have a problem.

When you think about fitness, do you consider the condition of your bones?

Did you know that bones are actually living and growing tissue? Like any other living thing, if not given the proper nutrition your bones will suffer. Even with proper diet and exercise, age and disease can result in bone loss for men and women. During and after menopause many women will see a sharp decline in estrogen. This drop can result in significant loss of bone density. The National Osteoporosis Association describes some of the bone concerns for women and why:

Being female puts you at risk of developing osteoporosis and broken bones. Here are some facts:

  • Of the estimated 10 million Americans with osteoporosis, about eight million or 80% are women.
  • Approximately one in two women over age 50 will break a bone because of osteoporosis.
  • A woman’s risk of breaking a hip is equal to her combined risk of breast, uterine and ovarian cancer.

There are multiple reasons why women are more likely to get osteoporosis than men, including:

  • Women tend to have smaller, thinner bones than men.
  • Estrogen, a hormone in women that protects bones, decreases sharply when women reach menopause, which can cause bone loss. This is why the chance of developing osteoporosis increases as women reach menopause.[1]

Men have to be concerned with bone health and loss as well. For men it can result from testosterone, calcium, or Vitamin D deficiency. Any of these issues can arise at various times in a man’s life.

Lifestyle and diet can also cause nutritional deficiencies that result in inadequate amounts of key vitamins and nutrients required for bone health. Lack of exercise due to inactivity or illness can weaken the bones, increasing the risk of fracture. Some medical conditions can trigger a breakdown in calcium or vitamin absorption to the bones, as can some of the medications used to treat these diseases.

The National Osteoporosis Foundation (NOF) indicates that the following medicines may cause bone loss:

  • Aluminum-containing antacids
  • Anti-seizure medicines (only some) such as Dilantin® or Phenobarbital
  • Aromatase inhibitors such as Arimidex®, Aromasin® and Femara®
  • Cancer chemotherapeutic drugs
  • Cyclosporine A and FK506 (Tacrolimus)
  • Gonadotropin releasing hormone (GnRH) such as Lupron® and Zoladex®
  • Heparin
  • Lithium
  • Medroxyprogesterone acetate for contraception (Depo-Provera®)
  • Methotrexate
  • Proton pump inhibitors (PPIs) such as Nexium®, Prevacid® and Prilosec®
  • Selective serotonin reuptake inhibitors (SSRIs) such as Lexapro®, Prozac® and Zoloft®
  • Steroids (glucocorticoids) such as cortisone and prednisone
  • Tamoxifen® (premenopausal use)
  • Thiazolidinediones such as Actos® and Avandia®
  • Thyroid hormones in excess

Note: This list may not include all medicines that may cause bone loss.[2]

Bone health can be addressed with your physician through exercise and nutritional supplementation. Simplesa’s new product called OsteoGuard combines nutrients known to supply bones with the minerals they need to help strengthen the bone itself and the tissues that surround and support the bone, as well as reduce the risk of osteoporosis and bone fractures.  Additional vitamins are included to ensure that important minerals make it from the gastrointestinal tract to the bloodstream and into bone.

For more details on OsteoGuard go to: http://www.simplesanutrition.com/products/osteoguard-120-tablets.html

[1] http://nof.org/articles/235

[2] http://nof.org/articles/6

OsteoGuard_bottlelabel__51977.1423755454.600.650

Simplesa OsteoGuard™ is taken twice a day, two tablets per serving, and ideally spaced twelve hours apart for maximum absorption. Each bottle of contains 120 tablets for a 30-day supply.

 

Health and Holidays

The holidays are frantic and stressful for everyone. If you are disabled or chronically ill, the holidays can present additional stress and potential health risks for you. For the caretaker of a chronically ill person the holiday can add another level of complexity and stress to your already busy life. No one wants to be a Grinch during this time of the year, but it is important to take some extra precautions and preparation to cope.

 

disabledchristmas

Per a recent article in the Huffington Post called “5 Ways the Holidays Are Hard on Those with a Chronic Disease (and 10 Ways to Cope)” the author provides advice on how to deal with the barrage of food, activity and traveling that may occur.

Food: Food is at the heart of nearly all holiday celebrations, and usually steaming mounds of not-so-healthy foods like sugary sweet potatoes. Desserts and sweet drinks are in abundance. For a person with a chronic disease, the variety of foods may be tempting or forbidden, or may just strike terror in our hearts or feelings of being bothered. If you’re staying in a hotel, you might be relegated to eating the in-house free breakfast that doesn’t accommodate your diet.

Traveling: Sitting in a car or on a plane for long periods of time can be the breeding ground for physical pain or, at minimum, provide ample time to worry about one’s disease. Traveling also means a change of routine and a lot of unpredictability and extra stress. For example, flying means I have to go through security at the airport, go through a pat-down while the rest of my family stands by waiting, and explain to multiple personnel what my disease is, what my devices do, and no, they cannot be removed from my body for inspection. Time zone and altitude changes can also be difficult.

Activity: Some holiday celebrations include activities which might be out of your typical routine: skiing, going from house-to-house visiting relatives, power-shopping with your mom on Black Friday. These activities can cause your disease to flare-up in undesirable ways, zapping your energy and bringing down your mood. [1]

For the caregiver who is constantly on call, the holidays just might seem like too much. If you know a caregiver the best thing to do this time of year is help. Perhaps offer to cook, shop, or just spend time with them. Many caregivers get burned out and need a break. Some suggestions for caregivers on how to avoid burnout this time of year are found in a great article by Empowher.com called “3 Steps to Avoiding Caregiver Burnout during the Holidays.”[2] The three biggest things to remember is know the signs of when you need a break, take care of yourself, and remember to ask for help. This is often easier said than done for many caregivers. Resources for help can be found at “The National Family Caregiver Association offers many tips and guides on how to take charge and effectively communicate with caregivers.  Log on to www.thefamilycaregiver.org or call them at 800-896-3650.”[3] The following great tips were found on Everydayhealth.com[4]:

*Eat healthy and try to exercise every day.

*Indulge in an enjoyable activity as often as you can – read a book, work on a hobby, or watch a movie.

*Pamper yourself with a massage or manicure.

*Keep a journal to record your thoughts and feelings.  This can be a good outlet for
frustrations.

* Be in touch with your own body and know when you are becoming ill or run down;
seek medical advice in a timely manner.

*If applicable seek support from your church or synagogue. Besides spiritual support, they often have programs to help caregivers.

*Remember that “laughter is the best medicine.”  Try to find some humor in daily situations.

*Join a support group.  If you can’t leave the house explore Internet options.

If you know a caregiver or chronically ill person, please remember that one of the best things you can offer this holiday season is love, support, time and help.

 

[1] http://www.huffingtonpost.com/rachel-garlinghouse/5-ways-the-holidays-are-hard-on-those-with-a-chronic-disease-and-10-ways-to-cope_b_8435494.html

[2] http://www.empowher.com/caregiving/content/3-steps-avoiding-caregiver-burnout-during-holidays

[3] http://www.everydayhealth.com/columns/lynda-shrager-the-organized-caregiver/how-to-avoid-caregiver-burnout-this-holiday-season/

[4] http://www.everydayhealth.com/columns/lynda-shrager-the-organized-caregiver/how-to-avoid-caregiver-burnout-this-holiday-season/

Healthy Weight Maintenance in Chronic Illness

The elderly, chronically ill patients or those with life threatening diseases are at risk for poor nutrition and subsequent weight loss. The maintenance or gain of healthy weight and proper regular, consistent nutritional intake can profoundly impact the disease, along with the body’s ability to combat disease, and most of all a patient’s overall quality of life. Patients with chronic illness often lose their appetite or cannot tolerate food well, and the consequences of that beyond losing weight they are also losing vital nutrients that are imperative during illness. The deficiency in nutrients subsequently lead to a decline in the person’s energy and their ability to withstand medications or prescribed protocols. Malnutrition is a common problem for those facing diseases and can play a factor in the patient’s side effects, decreased ability to fight infection and overall prognosis and outcome [1].

Simplesa ™ understands how important nutritional maintenance is, which is why we have introduced a new product called Simplesa Retain™ to support healthy weight management and stable nutritional balance.

Retain™ is a high calorie nutritional supplement that includes high quality, complex carbohydrate and protein ingredients helpful for promoting healthy weight management and increased lean body mass. The combination with other essential nutrients has a low glycemic index and is also low in fat. The benefits of Retain are that it provides for a healthy sustained energy source for patients who are struggling with appetite or weight loss problems. This nutritional supplement significantly lowers insulin and blood glucose response compared to maltodextrin. It also does not cause bloating or gastric discomfort as it moves quickly through the stomach for rapid glycogen replenishment and nutrient uptake in the muscles. The new product comes in a convenient powder that is available in either natural chocolate or vanilla flavors.

As with all nutritional supplements we suggest that you speak with your physician to determine what works best with your health situation and lifestyle needs. Retain™ Does Not Contain Sugar, salt, yeast, wheat, gluten, corn, soy, milk, egg, shellfish or preservatives artificial perspectives or color.

 

retainmain

For more information on Retain please visit the product pages:
http://www.simplesanutrition.com/products/retain-vanilla-2-31-lb.html
http://www.simplesanutrition.com/products/retain-chocolate-2-31-lb.html

[1] http://www.cancer.gov/about-cancer/treatment/side-effects/appetite-loss/nutrition-hp-pdq

Simplesa Deanna Protocol

At this time there is no cure for Amyotrophic Lateral Sclerosis (ALS). Many patients facing this diagnosis are in a state of helplessness and hopelessness.

Dr. Vincent Tedone, a retired physician faced this same news when his daughter Deanna (at age 30) was initially diagnosed with ALS. Not wanting to give up and determined to find something to help her, he developed the Deanna Protocol. This all-natural metabolic therapy is a specific combination of nutrients found naturally occurring in our bodies that are administered in a consistent and daily protocol. Although not a cure for ALS, the Deanna Protocol has been reported by patients to slow the disease’s progression and allowing some individuals to achieve a better quality of life. In fact, a study performed by the University of Florida showed positive correlation and supporting results of how the Deanna Protocol supplementation delayed ALS disease progression and extended survival in mice. The study’s findings indicated that “metabolic therapy produces a therapeutic effect in ALS mice which may prolong survival and quality of life in ALS patients. “1

CaptureThe goal of the protocol is to provide supplemental energy to the nerve and muscle cells to help in the prevention of cell death. Simplesa provides pre-packaged versions of the supplements required for the Deanna Protocol. The Simplesa products offer the convenience, cost effectiveness, and consistency of quality that supports the requirements of the Deanna Protocol.
The bottom line is that battling ALS requires fighting hard until a cure is found. The Deanna Protocol offers a natural therapy that has helped many people improve their quality of life. Find out more about how it might help you or someone you know battling ALS.

For more information on the history of the Deanna Protocol please visit: http://winningthefight.org/t/Deanna-Protocol

 

References:  [1] http://www.ncbi.nlm.nih.gov/pubmed/25061944

Guest Blog by Jodi O’Donnell – Ames, founder of the charity Hope Loves Company (HLC).

HLC is the only non-profit organization in the US dedicated to supporting children with a parent or grandparent with ALS. Jodi shared an excerpt from the charity’s upcoming book, “Someone I Love Has ALS, A Family Caregiver’s Guide” edited by Jodi O’Donnell-Ames.

The book will be available next month on Amazon.

Continue reading Guest Blog by Jodi O’Donnell – Ames, founder of the charity Hope Loves Company (HLC).

Why are Multivitamins Important?

Why are Multivitamins Important?

Most of us start taking some type of multivitamin or vitamin supplement from conception and beyond.

Your mom probably took pre-natal vitamins during pregnancy. Your first visits to the pediatrician include a prescription for a multivitamin drop, then you probably started school with the chewable that looked like your favorite cartoon character. Now you’re an adult and wondering about multivitamins and are there really benefits to taking them?

Continue reading Why are Multivitamins Important?

Talking to your doctor about alternative treatments for ALS

Considering the lack of options that mainstream medicine can offer to people with amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s Disease), it is not surprising that many people seek out alternative and complementary therapies after their diagonsis. Unfortunately, many physicians do not advocate the use of alternative therapies and often strongly discourage their patients from using them. This leads patients to silently suffer using only mainstream medicine, hide the fact that they are using alternate therapies from their doctor, or stand up to their physician and openly take these therapies against medical advice. This sort of antagonistic situation is not good for the patient/physician relationship, nor is it good therapy. Continue reading Talking to your doctor about alternative treatments for ALS

Alternatives to Rilutek

The Limitations of Rilutek

As most people with amyotrophic lateral sclerosis (ALS) know, Rilutek is the only prescription medication that prolongs life. Unfortunately, this increase is only about two months. Some people may enjoy greater benefits, especially those with bulbar-onset ALS, but most people will experience far less than a year of additional life with riluzole (Rilutek). Unfortunately, not every patient is likely to experience any benefit from treatment with riluzole. The drug is not likely to be of benefit to anyone with a tracheostomy, for example. Therefore, it is reasonable and common for people with ALS (PALS) to look for alternatives to Rilutek, or at least medications that can be used in addition to this prescription drug. Continue reading Alternatives to Rilutek

ALS Treatment: Alternative Approaches to Traditional Medicine

Amyotrophic Lateral Sclerosis or ALS is a progressive and ultimately deadly disease. Sadly, there are extremely few treatment options available for people with ALS (PALS). The only approved drug that can treat ALS, riluzole, only extends survival for a few months. Other drugs have failed to make a measurable impact on survival in clinical trials. Therefore, it is understandable that PALS and their caregivers often turn to alternative and complementary therapies to treat and manage ALS. Continue reading ALS Treatment: Alternative Approaches to Traditional Medicine

Finding Financial Assistance for ALS Patients

A diagnosis of ALS is devastating news for patients and their family. Dealing with the extensive costs associated with any chronic illness only adds additional burden and stress. Some care is covered by a patient’s health insurance but some costs are not considered customary or reasonable, or not approved by some carriers. In a recent study called the economic impact of amyotrophic lateral sclerosis: a systematic review by Matthew Gladman, and Lorne Zinman found that “costs associated with ALS were greater than other neurological diseases.”[1] Another abstract indicated that there are few published reports on the cost of ALS care in the United States, but wanted to so examine those costs and identified strategies to assist patients with these expenses. The study: Financial cost of amyotrophic lateral sclerosis: A case study March 2015 concluded that: Continue reading Finding Financial Assistance for ALS Patients

Simplesa AAKG+ Core Powder Nutrients Support Parkinson’s Disease

Ryan Merrill PhotographyThe ingredients in Simplesa AAKG+ Core Powder have been shown to exhibit benefits in several neurodegenerative diseases, including Parkinson’s disease. This paper details how the combination of Arginine Alpha-Ketoglutarate, GABA, Ubiquinol and Niacin found in Simplesa AAKG+ Core Powder, along with Glutathione, may enhance mitochondrial function and be effective stand alone and co-therapies in the management of Parkinson’s disease.

 

Click here for more information on Simplesa AAKG+ Core Powder.
Continue reading Simplesa AAKG+ Core Powder Nutrients Support Parkinson’s Disease

Preparing for Emergencies When You Have ALS

Emergencies can be frightening and dangerous for anyone. When you have a chronic illness like ALS, natural disasters pose additional risks for those who have limited mobility or are homebound.

Recently, the ALS Association posted a wonderful Emergency Preparedness Checklist for People with ALS. One of the most important things to do is to be proactive in case of emergency. The ALS breaks it down for you suggesting to take the time and work to prepare as you will then feel less vulnerable if and when an emergency arises. These disasters could include natural disasters, home fires, acts of terrorism, or accidental occurrences.
Continue reading Preparing for Emergencies When You Have ALS

Deanna Protocol Multi-Pack Overview

Simplesa offers convenient Deanna Protocol Multi-Packs with our DPS-AM & DPS-PM Blends. The Multi-Packs are a convenient option for ensuring you have everything you need for a 30-day supply. Each Multi-Pack offers the same nutrients, with a liquid and powder focus. Below is an explanation of each Multi-Pack.multi-pack-w-akg-liquid-ampm-powders.jpg
Continue reading Deanna Protocol Multi-Pack Overview

Simplesa – A Simplified Approach

At Simplesa, we make complex nutrition simple. We are consistently looking for ways to formulate products that combine well researched and document nutrients, which target a specific health focus and blend them together for an all-inclusive approach that not only saves our customers money, it also provides optimal nutritional support.
Continue reading Simplesa – A Simplified Approach