Tag Archives: alternative treatments

An ALS Patient’s Journey With Supplements

In September of 2012, Royce was given a spreadsheet filled with vitamins and supplements recommended for those suffering with ALS.

They were all part of a well known protocol that highlights the benefits of AAKG.

For Royce, the list made sense given he was already taking some of them. So, he decided to give it a try and follow the protocol and see if it made any difference.

While not 100% effective, he says that he’s absolutely certain it made a difference. He started off with a plan to follow it for six straight months. 

At first it was a little hard to follow.

Royce felt the hardest part was getting the needed exercise that the protocol suggested. 

One thing he recommended was taking AAKG with apple juice to improve the taste and to organise the doses with early morning, morning, lunch, afternoon, night and late night.

That’s how our Neuro-Health Protocol is organized on this page.

Royce noticed a difference in energy and symptoms of the disease and recommended that if you can’t afford all the products in the protocol, to start with the AAKG.

He suggests always having an extra bottle on hand.

He also recommends resistance exercises to stay fit and to maintain your muscle mass.

“I feel like I have progressed more slowly since I began following the protocol.” says Royce.

To make life simpler for people just like Royce, we’ve bundled all the most important supplements into one package.

See The Bundles Here

The Pros and Cons of the new “Right to Try” Law

On May 30th 2018, the President signed the recently passed Right to Try (RTT) legislation into law. This new law allows patients to receive unapproved medications without FDA notification for up to one year. It also removes the FDA from prohibiting access to an experimental therapy and removes the FDA from advising on dosing, schedule, method of administration or other important safety measures. In short, you’re able to side step the FDA and go directly to the drug manufacturer. You’re basically on your own without the oversight of the FDA. So, Caveat Emptor (buyer beware) and proceed with caution.

Nevertheless, this opens up the door to new possibilities that were simply not available before.

Here’re some of the Pros and Cons as we see them.


  • Finally, some options. The RTT provides a level of freedom…and hope, that would otherwise be denied patients of terminal diseases.
  • Some of the therapies may prove beneficial and/or point the investigators and drug companies in a better direction.
  • It’s the right of every individual to choose their own destiny.
  • Side stepping Governmental bureaucracy and perhaps accelerating therapies that show promise.
  • Patients can try other drugs, supplements and therapies and report their results to their physicians and drug companies. Now information can flow in more directions.
  • The ALS Association both welcomed and voiced reservations about RTT. The association is aware of and is tracking this new law and will communicate with the ALS community.
  • Since the drugs are experimental and not FDA approved, this MIGHT lower treatment costs, as pharmaceutical companies cannot make a profit on these drugs until they’re FDA approved.
  • Possible access to other treatments and drugs, available outside the US, that have shown promise in other countries.


  • Some medications may not be safe, although they must have passed Phase 1 of clinical trials before patients of RTT can try the drugs.
  • Patients must look out for “bad actors” stepping in now to take advantage of patients vulnerabilities. Check history and reliability of manufacturer.
  • Pharmaceutical companies have very little incentive to provide access or broadly distribute their meds since they cannot make money until the drugs are FDA approved.
  • The RTT law could weaken current patient protection laws enforced by the FDA.
  • The reality is that many experimental drugs have limited access and availability anyway.
  • The RTT law may work as a pressure release valve and may reduce pressure on the FDA to speed up approval of Phase 1, 2 and 3 drugs in the pipeline.
  • Patient has little to no legal safeguards in case therapy produces more harm than good.

All in all, we think that the net effect of the new RTT law will be a positive one. This law opens up the conversation about the FDA’s unjustifiably slow and expensive process and provides the patient with some control over their destiny. That being said, patients need to be careful not to make a bad situation worse and should continue to consult with their physicians before venturing into unexplored territories.


Talking to your doctor about alternative treatments for ALS

Considering the lack of options that mainstream medicine can offer to people with amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s Disease), it is not surprising that many people seek out alternative and complementary therapies after their diagonsis. Unfortunately, many physicians do not advocate the use of alternative therapies and often strongly discourage their patients from using them. This leads patients to silently suffer using only mainstream medicine, hide the fact that they are using alternate therapies from their doctor, or stand up to their physician and openly take these therapies against medical advice. This sort of antagonistic situation is not good for the patient/physician relationship, nor is it good therapy. Continue reading Talking to your doctor about alternative treatments for ALS

ALS Treatment: Alternative Approaches to Traditional Medicine

Amyotrophic Lateral Sclerosis or ALS is a progressive and ultimately deadly disease. Sadly, there are extremely few treatment options available for people with ALS (PALS). The only approved drug that can treat ALS, riluzole, only extends survival for a few months. Other drugs have failed to make a measurable impact on survival in clinical trials. Therefore, it is understandable that PALS and their caregivers often turn to alternative and complementary therapies to treat and manage ALS. Continue reading ALS Treatment: Alternative Approaches to Traditional Medicine